me before you

Me Before You and the big disability debate

Alex Bailey/Warner Bros Warning: contains film spoilers If you have met one person in a wheelchair. You have met one person in a wheelchair. When I was in Sixth Form studying hard for my A-levels (cough), me and my friends would sit around the common room having deep philosophical debates like: “which teacher would you snog […] Read more…

Gabe (2)

Down in the pump room

I closed my eyes. If I couldn’t see then I could pretend that I wasn’t there. Then I wouldn’t feel like I was intruding on a grief so raw I could almost taste it deep in my throat. I closed my eyes. If I didn’t move a muscle then I would blend into the backdrop. Then I wouldn’t be […] Read more…

doctor-1299996_1280

Ow

My little man, There is going to be an ow tomorrow. A great big fat one. And you won’t know why. It’ll catch you by surprise. Make you cry.   There is going to be an ow tomorrow. How do I explain what we are about to do? How it will hurt seemingly out of the blue. […] Read more…

backward2

Life with the backward lad

You got something going on with the MILF music teacher with the backward lad?” What would you do if you overheard this little gem of a conversation? Laugh? Not blink an eyelid? Bop them over the head with a heavy book? It is not big, funny or clever really. Yet this is what someone said just last […] Read more…

support

Pin a dirty nappy on the door

First, I asked for advice from a friend in a similar situation: Well whatever you do DON’T tidy up. Or wash your hair. Or the kids. In fact, get the bin and tip it out all over the kitchen. Leave a dirty nappy on the table. Even better pin a dirty nappy to the door haha. […] Read more…

Liverpool

Eugh, Liverpool

In 2004, the Mayor of London Boris Johnson famously said in a leading article in The Spectator that Liverpool, the city where I grew up and which houses the majority of my family and friends, was a “city hooked on grief.” They … see themselves, whenever possible as victims, and resent their victim status, yet at the same time […] Read more…

walking2

Deep, deep breaths

This is the first in a series of blog posts to mark the fourth Undiagnosed Children’s Awareness Day, which takes place on  Friday 29th April.  Each one will highlight different aspects of raising a child with complex medical needs of unknown cause – the good, the bad and the blooming lovely. Dear me from four years ago I stumbled across the photo below from Christmas […] Read more…

help

7 reasons why special needs parents need to vent

Have you ever had one of those days that starts badly and progressively gets worse? Nothing car crash dreadful, but a multitude of frustrating little incidences that make you want to scream, swig wine, and snort up cheese cake all at the same time. It could have been the heady combination of the baby not sleeping and the toddler […] Read more…

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