Archive of ‘And kind of special’ category

What makes the man (and the woman)?

Can you just watch the baby a second?Will you just get him that toy?Can you push him on the swing?Watch he doesn’t roll off the bed while I run his bath?Yes I’ll read with you in a minute after the baby is fed.Can you pass me that cream?Can you run and get the wipes?Would you […] Read more…

How do you hold a moonbeam in your hand?

Two years ago this week I sat in a hospital room holding my baby. Before me were three doctors, a geneticist, a researcher and a nurse. They told me their investigations/tests were taking them in three directions: Gabriel could have a rare neuro-degenerative metabolic disorder for which there was no cure and his life would be limited […] Read more…

You don’t heart us anymore

There was a time when we saw you all the time. You were our rock and you guided us through some stormy moments. Shoulder to shoulder we got through some tough times. You made us feel special. Every time we saw you there would be a reassuring smile. Under your watch things were going to […] Read more…

Word of the week: Hope

I don’t look to the future very much anymore. I barely plan next week let alone next year. I can drive friends insane with my vagueness when meet ups or other engagements are attempted to be made. The family calendar is only flicked through if it needs to be. Gabriel has taught us all to live in […] Read more…

The wheelchair

Last month we picked up a wheelchair for our little boy. At 19kg it is like lifting a heavy suitcase, but one that keeps bursting open on you. With a house full of equipment and disability living aids, you’d think I’d just welcome this into the jam-packed fold. But no, I haven’t. You see I […] Read more…

He ain’t heavy

Walking to school the other day I was aware of a neighbour’s little boy toddlering along holding the hand of his big sister. Oh look he is walking now, I thought. My brain then drifted off thinking about something else. Something mundane like my imminent tea and toast post-school run probably. But then a little voice caught […] Read more…

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