me before you

Me Before You and the big disability debate

Alex Bailey/Warner Bros Warning: contains film spoilers If you have met one person in a wheelchair. You have met one person in a wheelchair. When I was in Sixth Form studying hard for my A-levels (cough), me and my friends would sit around the common room having deep philosophical debates like: “which teacher would you snog […] Read more…

Gabe (2)

Down in the pump room

I closed my eyes. If I couldn’t see then I could pretend that I wasn’t there. Then I wouldn’t feel like I was intruding on a grief so raw I could almost taste it deep in my throat. I closed my eyes. If I didn’t move a muscle then I would blend into the backdrop. Then I wouldn’t be […] Read more…

doctor-1299996_1280

Ow

My little man, There is going to be an ow tomorrow. A great big fat one. And you won’t know why. It’ll catch you by surprise. Make you cry.   There is going to be an ow tomorrow. How do I explain what we are about to do? How it will hurt seemingly out of the blue. […] Read more…

support

Pin a dirty nappy on the door

First, I asked for advice from a friend in a similar situation: Well whatever you do DON’T tidy up. Or wash your hair. Or the kids. In fact, get the bin and tip it out all over the kitchen. Leave a dirty nappy on the table. Even better pin a dirty nappy to the door haha. […] Read more…

Liverpool

Eugh, Liverpool

In 2004, the Mayor of London Boris Johnson famously said in a leading article in The Spectator that Liverpool, the city where I grew up and which houses the majority of my family and friends, was a “city hooked on grief.” They … see themselves, whenever possible as victims, and resent their victim status, yet at the same time […] Read more…

walking2

Deep, deep breaths

This is the first in a series of blog posts to mark the fourth Undiagnosed Children’s Awareness Day, which takes place on  Friday 29th April.  Each one will highlight different aspects of raising a child with complex medical needs of unknown cause – the good, the bad and the blooming lovely. Dear me from four years ago I stumbled across the photo below from Christmas […] Read more…

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