This is the first in a series of blog posts to mark the fourth Undiagnosed Children’s Awareness Day, which takes place on Friday 29th April. Each one will highlight different aspects of raising a child with complex medical needs of unknown cause – the good, the bad and the blooming lovely. Dear me from four years ago I stumbled across the photo below from Christmas […] Read more…
It was at my 12-week routine pregnancy scan that I found out that Gabriel was high risk for a chromosomal disorder. The two days we had to wait before we saw the fetal medicine team for a detailed ultrasound were a blur of frightened tears. “We’re the monsters under the bed. The nightmares that keep […] Read more…
In Liverpool where I grew up the phrase “I am on the edge” is much bandied about. It is a brilliant statement that has evolved to comedy status over the years. The chippy was shut and I was starving. Then he couldn’t decide on Maccies or Chinese. I was on the bloody edge. There were […] Read more…
Sitting in a local bar a few months ago, I was chatting to a lovely family friend. You know the type that you don’t see that often. The conversation turned to Gabe. How is he doing? Grand, grand, I replied. Doing great. Standard response when out and about. There was a pause so I knew it was coming. […] Read more…